FAVORITE QUOTES:

"BE WHO YOU ARE AND SAY WHAT YOU FEEL, BECASUE THOSE WHO MIND DON'T MATTER AND THOSE WHO MATTER DON'T MIND."

Sunday, November 26, 2006

On the Go...

I think between Chris and Emma I am ready to take Tatum and run for the hills...or at least work. I have washed a ton of clothes and watched Cinderella about 400 times and played with ever string of beads in our house with Tatum. You would think after a extra long weekend the return to work would be well rested, yeah right...those days are so over :)

Today I took the girls to Julies house so we could try and get family pictures...Of coarse Chris was sick so we were down one, I guess we can always say he was taking the picture. Molly and Tatum were so cute I think we go some good pictures of them together...I know that the photographer’s are way better then mine...To bad Emma would not participate...”I Tired” was her excuse, it was very frustrating...Can I interest anyone in a three year old....

Wow tomorrow is Monday back to the grind...Fun fun and this month we are going to throw Christmas gifts, cards and post-office into the mix with kids and work. Whoa, I bet it flies by...thank god for on-line shopping, I have actually gotten alot done so far. :)

Sunday, November 19, 2006

36 Days Till Christmas


Last night Chris and I went to a wedding, the bride and groom were also Lisa and Chris, pretty crazy eh... Needless to say we had a very good time. Lisa was a beautiful bride and the wedding was very nice. It was a bit weird because I meet someone for the first time that reads my blog. It was funny, she told me how she enjoys reading it. I think it is a bit strange to have people know me that I do not know but lucky for me she was super nice. :) I am sure lots of people I do not know read it, that's fine it was just funny to meet someone:)

Today I went to Target with the girls and Autumn...I swear we were there two hours...I had to get a little Christmas tree for the family room. Ever since we got back from Disney World I have had the Christmas bug, they had so many beautiful decorations already up. Now with the help of Autumn I too have a ton of decorations up. All I have left to do is put up the big tree. We have to wait a bit longer for this since Chris insists that is real... What a pain!!!

Another thing I finally got for Tatum today was a bed tray. Tatums OT lady had suggested putting something in front of her Bumbo as a table for her to play on. It actually worked great she really seemed to like her toys up there. I should have gotten it for her sooner but she has just recently showed interest in being in that Bumbo for more then 2 seconds...

Another thing I did today was search Ebay for the Kid-Touch digital camera from fisher price. This thing is sold out everywhere....It is a must have as far as Emma is concerned...and believe me she needs her own camera, maybe then she'll lay off mine. Crazy girl :)

Oops forgot to mention Em only had a 12 hour bug she woke up fine Sat. morning but we kept her home from dance anyway...On thursday I took Tate to the eye doctor and they patched her. She is to be patched 1 hour a day on her right eye until her surgery 12-12...TO CUTE :)

Friday, November 17, 2006

Day Care Dinner

Ok... Sorry about the wordy poem in my last post....Kinda long but nice :)

Today we had Thanksgiving Dinner at the girls school... Chris meet me there so we could all have dinner. I made a plate for Emma and sat her down. After sitting only a second she said her tummy hurt, I passed Tatum to Yvonne and Erika and Em and I headed for the bathroom. Short trip only pee... Emma sat back down ate with her friends and then went to watch Nemo...

Chris and I were talking about leaving right after desert, I offered Emma cake and she said no...I thought wow maybe she is sick... Not two mins. later Emma came over to Chris and I to tell me again her tummy hurt...

She looked a little flush ( but she had been playing) Yvonne was saying she looks like she is going to hurl..the word hurl was out of Yvonne's mouth for a second, yep you guessed it
.... her dinner and red Capri Sun all over Chris...I am laughing now but at that time it really was not that funny...(but sorta, sorry Chris)

We wasted no time jumping into clean up mode. Kay took Tatum, Erika took Emma and Yvonne and I tried to help Chris...All this while rounding up gear and kids to get out of there...I think looking back now it was a day care dinner to go down history.

I am so glad we had two cars because Chris smelled terrible. OHHHH I have a feeling it is going to be a long night.... Miss D told me a few others have been sent home with this bug so beware... I sure hope the flu shot I got today kicks in fast. LOL

Being a Mom

A good friend passed this along to me today...It is really great and true.
Although many of us are not at this stage in life yet it is happening everyday. I fell like I woke up one morning and Emma was a big girl. She wants zero help...This someday is going to be Tatum too. I am not letting the WS put our life on hold as nothing should. I am sure our parents are going to really relate to this poem now just like we slowly are...I hope everyone has a great weekend.

Thanks for sharing Heather I thank God all the time our kids are going to grow up together, just think soon enough we are going to sharing cocktails on the beach watching the kids play wondering where our babies went...

On Being Mom
by Anna Quindlen

If not for the photographs, I might have a hard time believing they
ever existed. The pensive infant with the swipe of dark bangs and the
blackbutton eyes of a Raggedy Andy doll. The placid baby with the
yellow ringlets and the high piping voice. The sturdy toddler with the
lower lip that curled into an apostrophe above her chin. ALL MY BABIES
are gone now.

I say this not in sorrow but in disbelief. I take great satisfaction
in what I have today: three almost-adults, two taller than I am, one
closing in fast. Three people who read the same books I do and have
learned not to be afraid of disagreeing with me in their opinion of
them, who sometimes tell vulgar jokes that make me laugh until I choke
and cry, who need razor blades and shower gel and privacy, who want to
keep their doors closed more than I like.

Who, miraculously, go to the bathroom, zip up their jackets and move
food from plate to mouth all by themselves. Like the trick soap I
bought for the bathroom with a rubber ducky at its center, the baby is
buried deep within each, barely discernible except through the
unreliable haze of the past.

Everything in all the books I once pored over is finished for me now.
Penelope Leach., T. Berry Brazelton., Dr. Spock. The ones on sibling
rivalry and sleeping through the night and early-childhood education,
all grown obsolete.

Along with Goodnight Moon and Where the Wild Things Are, they are
battered, spotted, well used. But I suspect that if you flipped the
pages dust would rise like memories.

What those books taught me, finally, and what the women on the
playground taught me, and the well-meaning relations --what they
taught me was that they couldn't really teach me very much at all.
Raising children is presented at first as a true-false test, then
becomes multiple choice, until finally, far along, you realize that it
is an endless essay. No one knows anything. One child responds well to
positive reinforcement, another can be managed only with a stern voice
and a timeout. One boy is toilet trained at 3, his brother at 2.

When my first child was born, parents were told to put baby to bed on
his belly so that he would not choke on his own spit- up. By the time
my last arrived, babies were put down on their backs because of
research on sudden infant death syndrome. To a new parent this
ever-shifting certainty is terrifying, and then soothing.

Eventually you must learn to trust yourself. Eventually the research
will follow.

I remember 15 years ago poring over one of Dr. Brazelton's wonderful
books on child development, in which he describes three different
sorts of infants: average, quiet, and active. I was looking for a
sub-quiet codicil for an 18-month-old who did not walk. Was there
something wrong with his fat little legs? Was there something wrong
with his tiny little mind? Was he developmentally delayed, physically
challenged? Was I insane? Last year he went to China. Next year he
goes to college. He can talk just fine. He can walk,too.

Every part of raising children is humbling, too. Believe me, mistakes
were made. They have all been enshrined in the Remember-When-Mom-Did
Hall of Fame. The outbursts, the temper tantrums, the bad language,
mine, not theirs. The times the baby fell off the bed. The times I
arrived late for preschool pickup. The nightmare sleepover. The
horrible summer camp. The day when the youngest came barreling out of
the classroom with a 98 on her geography test, and I responded, What
did you get wrong? (She insisted I include that.) The time I ordered
food at the McDonald's drive-through speaker and then drove away
without picking it up from the window. (They all insisted I include
that.) I did not allow them to watch the Simpsons for the first two
seasons.

What was I thinking?

But the biggest mistake I made is the one that most of us make while
doing this. I did not live in the moment enough. This is particularly
clear now that the moment is gone, captured only in photographs. There
is one picture of the three of them sitting in the grass on a quilt in
the shadow of the swing set on a summer day, ages 6, 4 and 1. And I
wish I could remember what we ate, and what we talked about, and how
they sounded, andhow they looked when they slept that night. I wish I
had not been in such a hurry to get on to the next thing: dinner,
bath, book, bed. I wish I had treasured the doing a little more and
the getting it done a little less.

Even today I'm not sure what worked and what didn't, what was me and
what was simply life. When they were very small, I suppose I thought
someday they would become who they were because of what I'd done. Now
I suspect they simply grew into their true selves because they
demanded in a thousand ways that I back off and let them be.

The books said to be relaxed and I was often tense, matter-of-fact and
I was sometimes over the top. And look how it all turned out. I wound
up with the three people I like best in the world, who have done more
than anyone to excavate my essential humanity. That's what the books
never told me. I was bound and determined to learn from the experts.

It just took me a while to figure out who the experts were...

Thursday, November 16, 2006

YUCK!

So Who knows if you'll ever hear Chris' take on our trip, honestly it is probley better that way...LOL He has a laundry list of things that have to been done to his car before he is ever going to find thetime to post...

This morning is going to be just great, rain, car accident, traffic and all this before 7am, makes you really want to get out of bed. I have to still get the girls dressed and packed for Miss D's and "pre clean" for Elsa. Actually screw Elsa, she can clear around my clutter today it's not like she does a great job anyway.

You would think if you were paying someone to clean everyweek your house would be spotless. She has somehow missed the pacafire that has been under the living room couch for a month now ( I am moving it after this week) also our pet dust bunny is still living under the lounge in the living room. All this after I left a specific note for the furnature to be moved and the floor to be cleaned under...I guess my family is not the only one who blocks out my voice, or notes. I am in a tough spot I can not fire her I need her and it is not like she is my first cleaning lady they all suck after the third visit. I hate confortation but I think that I am going to have to have a conversation with her about it...any suggestions?

I have to take Tatum to the eye Dr. during my lunch today for measurements, her surgery is creeping up on us. I think it is going to be weird to see her eyes "fixed" there is nothing cutier then a crossed eye baby... except maybe a sleeping crossed eyed baby...lol

OK let me run and start my day...I have procrastinated long enough....Atleast tomorrow is Friday.

Oh yeah Dancing with the Stars anyone??? Way to go Emit!!!!!!

Wednesday, November 15, 2006

What 's so funny?


I just have to share this picture...Alex and Emma took it upon themself to get there photo's taken on the boat...As you can see they were a hit!!!

Monday, November 13, 2006

Not always a Breeze

Ok so I know I told you all I had a awesome time, and I did but traveling with two little kids and Chris is not always a dream come true. First of all I have to keep Emma and Chris feed at all times or the melt downs feed off each other...That was what happened ahhh most of the time, until we got on the boat that is. We did manage to have some fun but I had to put up with egg shell and egg shell jr while having it.

Chris has decided that we are not going anyplace else until we can travel formula free. I can not blame him it was not so easy, we actually had to have boiled water brought to our cabin on the ship to clean Tatums bottles...apparently the water is not better in the Bahamas...but back to my point... when that day comes I can promise you all that United/TED airlines well not be taking us there...That airline is full of wacks that have no clue what is going on, and I thought Southwest was bad. At least at SW you get what you pay for, you do not really expect more then a greyhound in the sky.

On the way home those dopes changed our flight leaving us on a late flight with not enough bottles...I could have had extra formula with me but HL security was not on my side.... Long story short Chris and Tatum got on a 2pm flight stand by and Emma and I came home on that 350 Flight. Funny our original flight booked in Feb was for 11:40am, I guess they cancelled it then changed there mind because it was there we just weren't on it. Anyway note to self, steer clear of TED...

I think the best melt down came from Emma while having Dinner at Cinderella's Round Table...She cried over not having her princess dress on, cheese, dinner, and everything else under the sun. This did wonders for Chris' already tired mood, lucky for me Tatum was being super cute. You should see the complimentary picture with Cinderella that came with our Dinner. Emma looks miserable and Tatum is looking at the floor. As we got ready to leave the restaurant my little Gemini's better half came out and stayed until she feel asleep. We were actually just going to bag the Magic Kingdom but lucky she pulled it together and we could hit a few rides...the Haunted Mansion ( still the same with the room that stretches LOL) Dumbo , Merry Go Round and yes we went through Small World. Tatum was funny during that one just looking all over the place. Chris and I always get a kick out of Small World, they still have the surfer dude in the Hawaii section.

After the last ride we headed toward Main Street for the firework show... If you have not seen fireworks at Disney I totally recommend it. They are fantastic best I have ever seen. I was worried about what Tatums reaction to the fire workes would be, not only because of the WS but Emma always hated them. Tatum surprised us all by just hanging out strapped to me and watching...she is a really good baby, I must say.

The boat was a great time but not so relaxing...We were go go go the entire time...Not so much the dream vacation for Chris...he says he wants a good three days of nothing but sleep before he is ready for vacation. When went to the beach BT (before Tate) he could get that but I hate to tell him that those days are over LOL. I was the one that got up and walked the boat with her every morning.

It is going to be interested to hear Chris' take on the vacation as a whole, I am sure we are due for post number 2 any time now...LOL

It's Better In The Bahamas


So I can sum the vacation up in one word AWESOME! We really had a good time, I am sure we are going back but once Tatum is a bit older…I am thinking 6 and 4. It is defiantly worth the money but as you all know Disney does nothing half assed. The hardest part was back to work on Monday…

Emma and Tatum were both Champs on the airplane, Tatum was actually better then Emma but we made it there and back with no problems, at least none from our kids. Homeland security is a totally different story; I think that they have gone off the deep end. One the way home we actually watched them trash some poor little girls Disney snow globe. Funny the tossed out my sun block but didn’t touch the lighter that was in my purse. I am starting to wonder if it is just as easy to drive.

The weather was great we meet all the Princesses and Mickey. Also got to swim shop and all got our hair braided…I think it is a moral sin to go to the Bahamas and not get braids LOL. While in Nassau we checked out the aquarium at the Atlantis and hung on the beach. Emma totally wanted to ride the wave runners. Chris shot that idea down real quick; I was not surprised.

Disney’s private Island, Cast Away Cay, was better the Nassau I could have stayed there the entire weekend it was a blast. Can you tell I am excited I guess I could just go on and on. It is nice to be home, I have some major catching up to do on the Blogs and work so I’ll have to tell you all more later. I have great stories and a ton more pictures.

Tuesday, November 07, 2006

Nervous excitement

I am so ready for a vacation...I think that I just need space and time away. I have to finish up packing tonight and get the house ready for Elsa ( cleaning lady) she is coming while we are gone. Atleast I get to come home to a clean house, always a nice thing.

I am a bit nervous about at forgetting something or having a sick kid. This is really our first big outing with two kids .Sure, we have been to the beach for a week but always rented a house. A few years ago we went to Disney for a few days but stayed with friends, this is our first extended stay together in a hotel/cabin. At least we only have one mini person that is moving, though she is as busy as three kids.

I can not wait to lay in the sun and play with he kids on the beach and in the pool. I also can not wait to send them to the "Oceaneers Club" for Emma and Nemo's nursery or whatever it was called for Tatum...Now that is vacation :)

The traffic report is looking bleak already so I better get moving I have a busy day. Work, kids, packing, cleaning and off to the airport crack ass of dawn...Look out Mickey here we come!!!

Friday, November 03, 2006

Bon Voyage

This has been a bit of a crazy week. I made a big decision this week to eliminate a huge work stress from my life. I have been working directly with this person for the last three years and on Wed I told my boss I could not longer do it. With all Tatum’s extra appointments and stress I just do not have it in me anymore for added stress and that was about all I was getting out of this work relationship.

I feel like I got divorced or something, we had been together a while. When the communication stops and one or both of you are not willing to take blame for any of the problems, it’s time to let go. It is kind a weird now part of me is sad and the rest is doing cartwheels. I must say I do have the most amazing boss because she knows me well enough to agree it was time and took action right away. I may actually be able to hold it together after all.

I am starting to really look forward to vacation, I would imagine that this is going to be the last one for a while…then again I always say that… LOL

We are going to go out with a bang. Dinner with Cinderella on Wed. Evening at her palace of Course then Thursday morning we are off to board the big boat. We are going to spend a day at the Atlantis in Nassau then a day in the sun on a private Disney Island. For the evenings we have Tate signed up for Nemo club or whatever it is that they call the nursery and Miss Emma is a new member of the castaway club. WE may never make it to the adult only pool but I have a feeling we’ll have a good time. Yvonne’s family is going with us too.

One of the best things in the worlds is seeing Emma (or any kid) at Disney World. I cannot wait this time because she is old enough to love it.

I’ll try and Post again before we leave Wed morning but not sure if I am going to get the chance I have a tin top do in order to prepare.

Tuesday, October 31, 2006

Trick or Treat


Halloween is the best...I have always thought that...What amazed me tonight was for the first time I actually experience it from a "grown up" perspective. I can not believe how much fun Emma had with it! What a truly wonderful night...

Yvonne and Steve brought the girls up to trick or treat around 6:30. Yvonne and I took Emma and Alex out alone for a bit and when our cocktails ran out we headed home for the switch. The girls then including Bre;) went out with their Dads while Yvonne, Tatum and I gave out candy. The customes that kids wear these days are just to much. We saw everything from gangsters to the IRS. It did get a little chilly while giving out candy so Tatum went from Tinkerbell to bumble bee...She was a hit in both outfits :) I think that I was the scary one...LOL

Ashley and Rico ( little Leon), they go to daycare with the girls and live down the St., stopped by with their parents(big Leon and Nikki) just as Steve and Chris were bringing the girls back so we got to get a somewhat group picture. I had a really fun evening, I can not wait for next year.

Family Photo's




Remember the pics we had done on vacation....I have a little peak for you all :)

Monday, October 30, 2006

Mixed Emotions

I do not feel like talking about CHOP sorry... All I have to say on it is... Kati, Szabi's hands are a characteristic of WS, Tatum has the same little fat hands...so cute .I though about you the sec that Dr. Kaplan told us that :)

Tonight was not one of my easier, Tree's post was the straw that broke it...I loved the post but I think it just hit home and I was already dancing on the edge. Sometimes you just need a good cry. LOL
Not one Dr. returned my phone calls today, I have a ton of work to do, I just missed work last week and next week we leave Wed for vacation, and on and on...oh yeah Dr. appointments an such too...I have decided that I am pissed about it all. I did not sign up to be a researcher, advocate, along with my other jobs. I learned that I am the one who is going to know the most...YUCK, I already know way more then I EVER wanted to .OK ok I am done whining...

Oh yeah I am pretty excited about vacation it has only been planned for over a year :)

Friday, October 27, 2006

CHOP # 1

Well I am not so sure I know where to start, we received a wealth of information in a little bit of time. I learned some good stuff there the most important one being it goes not matter where you live and who you see unless you your see a specialist or you are lucky enough to live near a specialist for primary care, get ready to study.

I thought my cardiologist were terrific and do not get me wrong I still do but the things that Dr, Rome was telling us about Tatu’s heart condition were scary as well as informative. He wanted to do a echo ( Tate laid still for a good hour for the Echo Tech, we were all so impressed) and try to get disc’s of the two prior caths before he could give us his full opinion. We are waiting to conclude to with him over the phone. All our Cardio office sent was the report from the cath in June...LOL I am overjoyed with the sharing of information between Dr.’s offices.

This brings me to the next big thing that I just learned...I am going to copy Tatum’s file and from now on there is not going to be a report written that I do not receive a copy of. If I have to pay extra for discs of her past and future caths and MRI’s then I’ll be doing that as well. I do have some stuff in a file at home but I want everything. This way you can go see whatever doctor you want and noone has to know or be bothered with getting your child’s record. When dealing with my kids there is no room for admin errors so I’ll be doing it myself...hehe

Our OT and PT are awesome...you were right on track with eveything CHOP told us. They actually said to keep listening to you all and we are doing great. Tatu showed off all her baby moves to everyone that would smile at her.

more later...

Tuesday, October 24, 2006

It's Official

After a zillion phone conversations with all the wrong people Dr. Desuza, the best doctor in the world, spoke to a doctor at care first and the Williams's clinic has been approved. I know We are cutting it a bit close since we leave tomorrow after work to head up there, but who cares the important thing is we are going.

I actually have no clue where to go or anything once we are there because not a piece of information has been sent to me but we’ll see... so far if I was asked to rate this entire process I would have to give it a -6. That’s right a negative number...we can hope that there medical ability is much better then there admin skills. They leave a lot to be desired in that area, LOL...

I'll check it out and give you all a full report this weekend:)

Beautiful Baptism


This weekend was a really good one. The weather was beautiful, a bit cold be great. Saturday was our regular Sat. I took Emma to dance and ran around with Yvonne getting stuff ready for Tatum’s party on Sunday. After dance class we ran around some more then went home. Yvonne came over with the kids on Sat. night to help me get everything set up for the morning and I must say before we went to bed the house looked great.

Sunday started out good with the exception of one over tired three year old. We finally made it to church, that is a good thing since it was Tatum’s day. The baptism itself was great I really like the church that we have been going to and I think that Pastor is great. Tatum must agree because when he picked her up she flashed him the biggest smile ever. I am so thankful that she is a happy baby. The photo is of Tatum and her godparents, Angie( Chris' sister) and Joe( brother in law).

After church everyone came to our house for lunch and a open house type thing. The food was great( thanks Yvonne) and everyone was having a good time. I do not think that the last people left until 8. I am always amazed how I am able to pack so many people in my house without it being over crowded whenever we have parties. I know one reason is our group of friends the kids way out number the adults. This is a good thing in most cases because I do not think that I saw Tatum all day. It is much easier to entertain without a baby on your hip.

Tatum actually does really well so far in big groups, I am surprised that it does no seem to bother her at all. I am keeping my fingers crossed that this does not change since I really do like to entertain. I am thinking about doing a super bowl party for her 1st birthday...LOL

Anyway it was a beautiful day ceremony and party for Tatum. Thank you so much to everyone who enjoyed the day with us. You are all such a special part of our lives. Those of you that could not make it thanks for all the kind wishes, we love you all too. :)


One more thing....Nothing from Oprah yet and we are still not sure what is going on with CHOP. I have 24 hours to canceled so I am hoping to know something today. How frustrating this has been...

Friday, October 20, 2006

Oprah- We want your ideas

My daughter Tatum was born 2-10-06 with congenital heart disease. After this was discovered the hospital did genitetic testing and it was discovered that she has something called Williams Syndrome. She was DX by a positive fish test at 6 weeks.
Williams is a rare genetic condition (estimated to occur in 1/7,500 births), which causes medical and developmental problems. It was first recognized as a distinct entity in 1961. It is present at birth, and affects males and females equally.
As a new young mother this has been very hard. I have found support from other mom’s in the same situation that I have meet online. We all have blogs that make it easy for us to stay on top of each other daily lives and trials with our children. This is the link to my Blog… www.emmaandtatum.blogspot.com
The insurance companies have been an entire different racquet. I am only trying to get the best for my baby. I was recently denied a request to take my baby to the WS clinic at CHOP (children’s Philly). This was a request sent to Care First by my daughter’s pediatrician. I feel that insurance is a scam. We pay 800 a month for family coverage and until Tatum was born no one was ever really sick. When we need them now they are not here for us. How can Care First possible call themselves one of the best in the country? I feel that this has to stop at some point. Being a middle class family there is nothing I can do for my baby without insurance, we cannot afford these appointments out of pocket and my family income is to high for Tatum to qualify for medicade or social security.
What is it going to take for this nonsense to stop, is it ever going to be a equal playing field for all sick children? I am not sure if there is anything you all can do to help but figured it was worth a try.
I think awareness of this syndrome and our countries poor over priced heath care is a huge issue especially with the elections around the corner
When it is time for Tatum to have her heart surgery is the claim to have this done by the best going to be denied because it is "out of network" I bet it would be a non issue for the suits children that are making these poor decisions. So is what is good for the goose really good for the gander?

So maybe I am a bit nuts but this is what I sent to the Oprah producers…LOL

Thursday, October 19, 2006

Eye see You

I picked Tatum up this afternoon for her eye Dr. apt; it was a nice and short visit. They are planning on doing surgery to correct the Esotropia (a type of strabismus) on Dec. 12. I am pretty impressed with my big medical words but all it means is crossed eyed LOL.

Tomorrow we have a 9am apt with the cardiologist and then the weekend. What a full week. I am currently playing phone tag with her pediatrician about the super pooper that we still have on our hands….Kinda gross I think I am going to have to collect poo for testing. YUCK…That was not in the motherhood manual, then again neither was WS. LOL

Wednesday, October 18, 2006

Such a Bad Friend

I feel so bad and have been thinking about this all week. Although I did tell this person I am sorry I still feel crummy. I totally spaced a wedding shower this past weekend. My friend Lisa is getting married in November and her shower was over the weekend and I have no excuse other then brain fart…

Lisa I am so sorry you are a great friend and I am a HUGE slacker!!!! So sorry…Good Luck with your marathon next weekend, I know you are going to do great.

Sunday, October 15, 2006

Renaissance Festival


This was Chris' first year to go with me to the Renaissance Festival. He actually thought it was pretty fun. It is so funny to see some of the patrons dressed head to toe in Midevil garb. I think that is the most boobs you see in one place and really it is not all that pretty LOL...Anyway all in all it is a very fun but long day. Face paining, tons of food and entertainment it is way easy to loose the day there.

Tatum was a huge hit everyone just thought she was soooo cute. We were being stoped all over the place by random people, some even wanted to take her picture. Steve, Yvonne's husband, comment to that was better check the blogs tomorrow she may be on someone differents... LOL. Blog envy HA-HA. One lady did ask me if she was three months old, HA all I could think was oh gosh it is starting...I just laughed and said no she is 8m just a peanut.

It was a beautiful day to be outside and we all had a really great time. I think it is going to be much easier to get Chris to come along in the furture now that he nows how fun it is, and the beer is pretty good too. :) I think Tatum even liked it, or atleast holding the mug LOL.

It is so nice to know that the four of us can always no matter what have a nice time together, and our friends that went were pretty fun too. Till next yr...

Wednesday, October 11, 2006

It is Amazing what a Little O2 can Do

Last time When Tatum had her Cath and Ballooning she had a few weeks of firsts . . . If you remember she starting reaching, holding her bottle, passing objects and best of all those smiles . . . Well this time the amazing Tate had PT, Monday, and OT today. Needless to say she wowed everyone with her stamina and her new tricks.

When we got home this evening Emma and I were getting our evening dose of ET and Tatum was hanging out loving some tummy time. I looked at Tatum out of the corner of my eye and I caught her on all fours. Yelling for Chris to come downstairs I ran and got the camera. Tatum showed us who is ready to move!!!! I am sure we have a way to go are far as really moving but I was stoked:) After this I moved on to seeing how long she could maintaine her balalce sitting... Hopefully I tired her out and she'll let me sleep.

I Caved

Ok so when I finished my last post I got Tatum up held her gave her a bottle and she was out in five mins... that was about a hour ago...so atleast she is going to have a small nap before Terry ( OT) gets here any min...What am I going to do with that girl. I guess Emma is right she says "Tatum is nocturnal" kids where do they come up with this stuff.

OH YEAH,...I have to brag a bit. Emma wrote her name!!! She loves to write on the patio with chalk and now she wants to write everyone's name. We were so impressed to see her actually write her name with no help :)

Cry it out?

I feel like this is a pretty good question...Chris just asked me a few mins ago when were we going to let tatum cry it out....So right now I am typimg on the computer and listening to her SCREAM. It has been about 5 mins but feels like 50, really though give me a brake she has been up since 3:30, I know that girl has to be tired. At this rate she is going to just be a peach for OT in a few hours. She is really determined, just not giving up and it just breaks my heart to listen to her but I do not know what else to do. This is two 3:30 mornings in a row yipeee we are on a roll.

When do you just let them cry? For how long....I am a push over...Going to get her now...

Let the day begin I am already showered...LOL I did that a hour ago.

Sunday, October 08, 2006

Pro's and Con's

I am sure the con's big time outweight the pro's but I am making a list any way. This is my WS pro and con list... It is amazing how I made it through one child without any of these words ever crossing my mind. Atleast no in reference to my child. NICU; PICU;Calcium;Low tone;PT/OT;Aorta,Pulmonary Arteries, Heart Cath, Sedated anything, Hernia, MRI, Low Weight Gain, leg brace, faliure to thrive,scoliosis, electrolyte check, WILLIAMS SYNDROME...I am stoping but I think the list could go on and On.

The only pro's I have managed to come up with are these pictures :) and blogger has placed them everywhere:) I think meeting these ladies has made it worth. There are also more that I do not have photo's of. Thank you all for being the upside, it would be that much harder without you.




















Thursday, October 05, 2006

10/4 and 5


This blog is the first one written by me(Chris). I’m the dad that no one hears from. I work behind the scenes, to keep the show going flawlessly. Lisa and I are at the INOVA cath lab, and Tatum has just come out. Everything went well. They did what they said they were going to do, plus some. Its always nice to get a little extra for the $18,000 spent for the procedure. I guess we can’t complain about what we get for our health insurance dollar(well someone has to get their moneys worth). As I was saying, the docs went in with their little cath things and took multiple pressure measurements. All were pretty good, except the pressure difference between the upper and lower aorta. This was a problem they noticed before but were content on letting it grow on its own. This time they saw more of a pressure difference than they would like. So they put the cath where the narrowing was and ballooned it out, to make sure it wasn’t hard tissue and would grow with her. And it was, so no further action was taken. They also ballooned out her pulmonary arteries as planned. Other good news was that the measurements taken of the size of the arteries was very close to what they measured by a sonogram at the cardiologist. Its just nice to know the sonogram results are accurate. So Tatum is recovering well and we’ll be going upstairs to a room for the night. This is just precautionary to make sure she’s doing okay. I’ll be leaving soon to beat the atrocious D.C. metro area traffic, to pick up Emma. I’ll see if I can count how many times she asks “where’s mommy”, and how many times I have to tell her “she’s with Tatum at the doctor”. Maybe next time post I’ll be able to tell you how my racing school went. Its at the end of October. For the school I’ll have to rent a car, but next year when I race I’ll have my CRX ready to go. I went to race school about 15 years ago, then raced go-karts for a couple of years. I’ve been geeking to get back on the track ever since. So I’m getting pretty excited. I have to give props to Lisa for giving me full support on this endeavor. She kind of has too. Unless she wants a major crackdown on the almost daily Pottery Barn/Gap/whateverthehell.com packages that greet me on the porch. That’s all for now. Maybe next time I’ll have a pic of my racecar to post.

10-5

Well I think last night was a tough one for Both Chris and me.Chris had Emma who was missing her Mommy and I had Tatum who was missing sleep. Due to her poop issue we got a private room, at least one good thing came out of it... Autumn came and brought Chinese food and Ben and Jerry’s, Yum. After she left, I went to sleep but only for about an hour and a half. Tatum woke up about 12:30 and was up until two. At 2 I was over it and the nurse took her to prevent a mental break down. All the nurses remember Tatum and just love her I guess she has been here every four months since she was born and is the only Tatum . . . everyone was so impressed with how big she has gotten.

Right now I am just sitting around waiting fo/5r a chest x-ray so we can leave, I wish they would hurry up I want to go home. I am ready to not have to be back here for 4-6m hopefully six and I promise next time I’ll remember my cell phone. :( Chris had left me his but it just died . . . I wonder what else can go wrong . . . Blogging in word is kinda funny but of coarse no internet service. I guess I should try to enjoy who knows if I’ll ever get my own room again . . . but really enjoy a hospital, YUCK!

Amy, Avery’s Mom told me a little game called make the resident cry... Amy your still up on me I could not make anyone cry but don’t worry I am not giving up that easily I’ll be back this winter for round two. Anyone else want to play HAHA. The things you do bored at the hospital.

Tuesday, October 03, 2006

Not so Sure

I am not so sure what is wrong with me today. Daycare called this afternoon and I had to go get Tatum early because of her uncontrollable poop, you would have thought that my fish died or something...I could not pull it together. I rushed her back to the Dr. and she is fine just has diarrhea. I think I am just finally losing it but I just have this awful feeling in the pit of my stomach.. Emma is going to Yvonne's tonight so I won't even see her until Thursday when I get home with Tatum, I already miss her I did not even get a extra hug... I guess I am just having one of those days... Perfect timing eh. I'll let you all know about tomorrow as soon as I can.

Monday, October 02, 2006

One More Day

Well if all goes well the Cath is Wed. Tatum had a bit of fluid on her ears so she was given a small does of antibiotics to clear them up. She has been a poop machine lately maybe due to teeth or a stomach bug who knows but her diaper rash is out of hand... Anyhow all this combined landed us in the ped. office today. Trying to stay healthy until after Wed. please nothing go wrong she really does need to have this cath done. Pray for Tatum she is starting the week off a bit rough.

On the plus side that little chunk is tipping the scale at a whopping 14.9, I guess someone in my house likes my cooking...LOL or the way I mix baby food and rice cereal together HA. Who am I kidding cooking yeah right... ;)