Spring is coming...

Easter, what can I say with Easter comes our second Williams Syndrome DX anniversary, it souled be worse…at least it was warmer then last year. You know Since Williams is what it is and such a part of our life's now I think I am done with remembering anniversary's in reference to it, I mean really why bother, it is not like I really knew Tate all that well pre Dx she was super little. :) Anyway.....

We had a pretty full weekend again Saturday I took the girls to our church’s “Easter Eggxtravaganza” it was a bit chilly but lots of fun. We actually had to call Chris and have him bring us some hats and gloves LOL. Emma brought a friend with her and I have to tell you the two girls were adorable they did two egg hunts, dug in a sand box for toys and oh yeas we hit the moon bounce about three times. It is so nice to see Emma grow up and interact with her different friends I just can not believe she’s my 1 baby. I guess I have to get used to the fact that she is my big girl.

Sunday was a lot warmer outside, the weekend turned out a lot nicer then predicted we got up and went to Angie and Joe’s for our annual Easter egg hunt and yummy breakfast then over to Baltimore for an early dinner at my sisters house. The girls all had fun looking for the eggs, even Tatum got into it. I think the picture I have posted may be my favorite of all the girls together.Autumn joined us for dinner this year that was a nice extra. Poor Chris was total the chauffeur since we all sat in the back seats to watch Enchanted on the DVD, super cute movie.

The kids all had a good time playing, at one time I looked in the living room and they were all playing very nice just not at all together, too funny. Julie had a fantastic dinner like always and I even got to go home with some stuff from her closet. Got to love that!!!

Always on the go....

Well another weekend over!! The older I get the faster they go. I got to have lunch with Whitney and her sister on Friday afternoon and Whitney came back to my house with me. I do not think that Emma is ever going to stop talking about her. Whitney played the littlest pet shop with her and read her a million books. They were really cute.

Saturday morning Emma went to the movie with one of her friends and I had to take Whitney back to her Sisters, they had spa appointments at 11. After I dropped Whitney off and picked up some Easter stuff at the mall I drove into Baltimore to check out our friends new store grand opening. The store was adorable it is called Bediboo, this is the website... http://www.bediboo.com/

So anyway, after that Tatum and I stopped by Dana and Scott's house to play for a little bit. Tatum had a blast playing with Jason, although she was a dirt ball by the time we left it was totally a beautiful day.
Once we got home we headed out for a cook out with Chris' co workers. It was fun to meet them and we actually ran into an old friend we had not seen in like 4 years. Kinda random and funny all at once.

Sunday was a bit colder then Saturday but we still managed to get alot done. Chris went to Costco while I ran around with the girls. We had dinner at Angie and Joe's house to celebrate Chris' Mom 's b-day. It was nice to see everyone and Emma had a great time playing. I was psyched because I finally got to see what Gautier Hero is, I know lame but I had never seen it played before. I can not wait to see what the video games are like by the time we are actually buying them for the girls...

Needless to say it was a busy weekend. Wow I can not believe it is time to go back to work already....Got to get these kids in bed. Hope you all had a great weekend can you believe it is almost Easter...

DST already....

Well hopefully you all feel better then me today....I love and hate daylight savings time all at once. I love it because it means SPRING...I hate it because it steals sleep and although only an hour I may as well have gone on vacation in Hawaii and taken a red eye to get to work... At least the kids seemed to handle it well...

It was pretty cold all weekend so we really did not do much. Chris took Emma to the pool on Saturday to work on her swimming skills. I think by the time summer starts she'll be very close if not swimming alone. Not so sure we'll make the swim team this year but who knows, I guess we'll just have to see how she does. Tatum should be pretty funny this summer too, I am sure she'll love the pool as long as I am right there with her. I can not believe how stuck to Mom she is...I guess I should enjoy it since she is so darn cute.

We saw the genetics Doctor on Thursday and he was also concerned about her speech, I am not as worried about it as everyone else I know she'll talk eventually. I am going to attend some of her speech therapy for the next few months to see what I can do to help her along, I think we'll have her saying more in no time. Compared to other Williams kids she is not that behind in speech right?

I have to start getting Emma's forms together to register her for kindergarten, wow I can not believe she is going to school this yr. it seems like just yesterday that she was born. I am also thinking about putting in Tatum in a more structured Daycare, I think it would really help her out with her communication skills. The YMCA where Emma goes to pre-school seems to have a really great program for children Tatum's age too. I am thinking that she'll get much more out of that then just being at home one on one with a sitter. Thoughts anyone?

Anyway I have work to get done...I'll try and get some pictures up soon and post more this week. Whitney is coming out to visit her sister on Thursday so hopefully I'll get to catch up with them this weekend. Happy Monday :)

What a week...last week

Well I have to admit last week was just exhausting and emotional. I went to KY over the weekend, was able to have Tatum evaluated by Dr. Mervis and her fabulous team as well as attend the services for Blake. They are in IN about 30mins from Louisville.

This was the first time I attended a funeral for a child and I can promise you the next one I go to is to soon. In spite of everything Whitney looked great, she is even starting to show. I got to have lunch with Troy, Whitney, Brandon one of the cousins...I forget his name but he and Brandon were just to cute. It was really nice to spend time with them away from everything. I am so excited because Whitney is coming to MD when her sisters Baby is born, that is like anytime now, so I am totally getting to see her again soon.

Dr. Mervis thought Tatum was doing really well with the exception of her comprehension and speech but we are working on that. Her fine motor skills are terrific. She was awesome on the plane and everywhere we went actually I do not think she cried but maybe three times all weekend and two of the time were because she wanted me. Yes it is true I have a Williams Kid that is major clingy, it is sweet, I guess :) not so common from what I understand.

Anyway you would all be happy to know that when we returned home there were locks on the kitchen cabinets ( the lower ones) and yep a gate at the top of the stairs. Way to go Chris, all it took was a trip to the ER and last Wed. night he had to do the Heimlich to get the change out of her that she was chocking on, I think I forgot to mention that last week.... Well anyway that is behind us moving forward we are Tatum proofed :)

Happy Hump Day Everyone !!!

From Whitney's sister Tiffany...

Lisa,

I finally got details, I will post them below:

Blake Matthew Hill
July 6, 2007 - Feb. 26, 2007

My sister will be posting later on her site, I'm not sure when, but I wanted to get the information out to all of you lovely people who have supported her and Blake throughout.

Visitation and services will be at:
Gehlbach and Royse funeral home
318 E. Chestnut St.
Corydon, IN 47112
(812)738-4131

Visitation:
Friday, Feb 29 12 noon - 8 p.m.
Saturday, Mar 1 9 a.m. - 2:00 p.m.

Service starts at 2 p.m. on Saturday.

Expressions of sympathy can be sent to the funeral home or donations made to the Lili Claire Foundation.

July 7, 2007 - February 26, 2008

You'll Always be in our hearts Baby Blake...We all Love You...

We've had happier days

I spoke to Whitney briefly she mentioned that they would maybe have to let Blake go this evening. The MRI results showed little to no brain activity....Please email me or one of the other WS Mommy's if you would like an address or more details, I just do not have it in me to post.

God Bless Baby Blake he has been through so much in his little life and so have his parents...I feel so honored to have been given the opportunity to at least hold him once.

Not a bad Mom???

I feel so honored Chris sent is very first Text Message today and it was to me saying I was still a good Mom...he knows how terrible I still feel since technically that tumble happened on my watch...anyway the Doctor said she was fine and not to worry her 20m old did the exact same thing, not that it really made me feel any better....so here are the terrible stairs and poor Tate's head, I guess it does not really look that bad today, I just hope she doesn't get black eye's from it. Told ya they are pretty steep... Nice purple bump huh, can you see it in the middle of her for head??? Sorry Tate I love you ;)

Never a Dull Moment

This has been an exhausting weekend, we helped Autumn move in her new place on Saturday and today I went through all the girls clothes, I am not even done totally and I spent a good 5 hours between the two rooms...I am ready to have a huge garage sale come spring. Our neighborhood has one planned for 5/4...this may actually be the first year I am prepared.

Anyway I am just hanging out listening to Tate scream herself to sleep like she does every night. Normally I do not listen but tonight I am thinking it is a good idea since she fell head over heel down 14 wooden stairs, yep the front staircase of coarse that would be our luck no need to fall down the carpeted stairs...I knew that no baby gates would get us eventually and today it did. Now maybe Chris well put up the gate we have and buy so more for the rest of the stairs ( we only have three flights all no less then 13 stairs and only the bottom flight has carpet, not even a runner on the others ) I guess if he won't listen to me about gates before today maybe he'll listen to the paramedic that was in our living room around 6:30 this evening. I' d take a picture of the staircase to show you but It would just be embarrassing. Those who have been here know how I must have been freaking... Chris had to keep his cool because Emma and I were both a mess along with Tatum those are some pretty steep stairs.

Chris thinks we are one step away from social services being called since the cop that answered the 911 call was the same one that was here last weekend for Emma's 911 hang up call.... I think she was testing how it worked because we had no clue she even called until they called us back to let us know they dispatched an officer....great huh. Anyway...

Tatum has a huge black and blue bump on the front of her forehead that took all of 4 mins to show up and had a bloody noise, she was absolutely hysterical ( which is actually a good thing for the situation) so the medics recommended that we take her to the ER instead of traumatising her more with a ambulance ride she was responsive and never lost consciousness or threw up so they thought she would be fine if we took her to instead of them.

Needless to say we spent he remainder of our evening there. The Dr. thinks she is fine by the time he saw her she was pretty much her normal self but did recommend that I take her into the pediatrician's office in the morning. To be honest think I was as shook up as she was. I think she is going to be just fine she had no trouble throwing down a happy meal around 9:30 when we got home, poor kids got a very late dinner since that was where we were headed when all this happened.

The two funny thing we learned from this is that our local hospital has a Dr. Pepper..no joke we heard him paged, Emma got a kick out of that, and Tatum totally knows what a hospital and a Dr. is and she is not so fond of them or anything that they do. She ripped that little red O2 reader off her foot just has fast as they put it on and wanted no parts of an ID bracelet...Awe the ID bracelet another one fore the collection...

I feel so bad when she cries herself to sleep but I really have no choice if I let her sleep with me she just moves around usually falls off the bed and finally falls asleep after like 2 hours...Once she is asleep she is out but getting her to go to sleep has never been easy for us.

At least she wakes up happy..... We actually had to wake her up on her birthday so she could open her presents before my Mom and sister had to leave, look happiest little thing ever...

Anyway here are a few of the pictures from her b-day...Like the Ghetto candles, what can you do I forgot to buy some..good thing she was only turning two, just imagine if I forget for Emma and have to put five candle sticks in there...HA HA that would be one holey cake!!! Welp she is finally asleep and all is well, I can hear her breathing and no vomit... I hope her head doesn't look worse in the morning...I'll try and get a picture of it...trust me it is not pretty, my poor little princess...

Not so good...

Well I spoke to Kim and Ava seems to be doing better, they just are not sure what is wrong with her. She should be able to head home in a few days so if anyone wants to send anything just email me and I can give you an address...

Our little baby Blake on the other hand is really not doing so well. Just keep praying for him and the family I know this has to be a hard time for all of them, I bet the hardest thus far. My emotions have gotten the best of me so there is not much more to say...Good night everyone...

Life Keeps Moving

Wow…so I wrote a post last night about my families last two weeks, Nemo on ice that we all went to see on Sunday afternoon and tons of pictures. I am sure this post is going to make it on the blog at some point this week so yeah we have a guaranteed two-post week.

Instead I am taking a moment to tell you all how brave each and every one of you are in your own way with each very different DX in the best way we know how. I imagine that this is taking a toll on all of just as much as it takes a toll on me.

I have recently decided that I should spend more time at home do my best to avoid drama (I swear sometimes I feel like I am living a HS nightmare) and eliminate the relationships in my life that are not easy. I can’t handle the grief in my life and my fiends that need me as well as grief from relationships that should just be thoughtless. So now that I have that off my mind, I have some Williams baby updates…

Blake is still hanging in there no real change…they are having a very hard time weaning him off any of his meds, if anything he is requiring more. Whitney’s Mom is up there with her for a few days. Not such good new but yesterday Ava was transferred up there as well. Kim called last night for Whitney’s number. Ava is also not doing so great she can’t eat anything and is just wasting away. Her organs are also showing signs of shutting down, Kim has promised to keep me posted but she is just not up for blogging. Hopefully Laura, Ava’s Mom and Whitney well be able to find so comfort with each other up there. It is always easier when you have a friend; please keep these babies and there very young Mom’s in your thoughts and prayers…. I am trying to get an address so we can decorate their rooms with love.

Iced over and Sick.....

Sorry long time no post but we have been attacked by the flu bug. The girls and Chris were sick most of the weekend. By the time Sunday rolled around Tatum was much better and even Emma seemed fine. Around 3am Monday morning the flu bug got Emma and she is still sick. I can not get her fever to break to save my life. Her cough has gotten much better but that fever is going no where fast.

We did not really do much for Tatum's birthday, My sister and Molly came by ( Molly is now sick too) my Mom Chris' Mom and Walt and a few friends braved the germs. Sharon stopped by and Dana and her family. It was nice very low key, it was great to actually get to hang out with Dana, Scott and there boys.

Pim had a interview with a School yesterday so Chris' Mom came down on Monday to help with the girls, she may get to go home sometime today if the weather cooperates but we don't mind keeping her, the girls love it.

I got a message from Whitney and spoke to her quickly Blake's lungs are a little wet from better blood flow. I have pictures to post but the kids are up and I need to get ready for work so maybe I can download some this evening when I get home :) Have a good day all and be careful driving!!!

hmmmmm my spell check is not working anyone else having that problem?

Don't be jealous...LOL

I am so busy at work so I only have a quick second....No news from Whitney I hope everything is OK there......I am blog slacking sorry to all I peek but have not commented in forever but I am checking at least once a week :)

We are doing something small for Tatum on Sunday since it is her b-day and tonight I have a date with Emma, Alex, Yvonne and Fiona...Yes Hannah Montana in 3-D....What are we getting ourself into HA-HA...

Have a great day!!!

Lisa

Baby Blake

I spoke to Whitney around 10am today Blake's saturation level had dropped to like 68 and they bagged him but he was still breathing on his own. They were just grabbing something to eat. I think Amy was going to try and visit her. I wish I could I just want to give her a big hug. If I can catch her again I'll be sure to let you all know....May I can get her to text me a picture... Keep saying extra special prayers.

Where does the time go...

How anyone with a full time job has time to blog is beyond me. I mean do not get me wrong I used to be able to find the time but now between chasing two kids down from the moment I get home and just a tiny bit of down time for my self I am just not seeing it.
I mean right now I have a second between American Idol, calls from loan officers that are still at work, and Emma's in the tube. The colored water should entertain her for awhile or until Chris brings Tatum to me... By the way have I mentioned that Emma wants to sing Annie on AM...she is nuts!!!

We finally have Autumn back we found this kick ass Apt close to me in cute little downtown frederick...Yip ehh we finally got her back!!!!! I told her if she did not rent the place we found I was. It is adorable right in the middle of downtown and walking distance to all the fun spots best of all I have a parking spot now when the girls and I go walk around on nice days...haha at least I have an unloading spot right :)

Well Business has certainly picked up although it has not helped us out a bit financially as of yet but soon right I have my fingers crossed!!! Tomorrow morning I am taking Tatum to the eye doctor. I have given up on routine visits at Wilmer I mean I love them but I just can not waste the day there for one anointment so we are going back o the original eye doctor at least for general eye checkups...if in the future eye surgery comes up again back to Dr. Cameron we go.

I can not believe my little baby is turning 2 on Sunday it is just beyond me...I feel like 2 down 3 to go since the doctors said we want to get to 5 before any major surgery's...something is keeping her going strong and I am not going to question it just ride it out ya know.

Sorry to hear about everyone’s bad weather ours as been sporadic but for the most part good 50-60 over the weekend and supposed to be nice tomorrow Chris actually took Emma swimming this weekend. We have to get her little butt swimming across the pool by summer alone in order for her to swim on the summer team. Personally I think she looks more like Rocky then a swimmer but you knw Em she had to wear my sweat shirt LOL......

ok-ok I got to get these prunes out of the tube...Tatum joined Emma a little big ago...4 yr olds the biggest undercover blessing you'll ever meet!!!

Blake update...

I spoke to Whitney and Blake has gone in HF 2 times but seems to be doing a bit better now....I think all the prayers he can get are going to help our little fellow. Whitney is hanging in there but she is literally sick to her stomache over it all. She thinks that Blake just needs a bit more time to get it together. Email me if you need her number.

SHE SPEAKS

I guess it is only fair since Emma said "Dada" first that Tatum would say "Mama" first....

She had been babbling sounds for a while like dadadada or babababa you know stuff like that but she has finally got Mama down and is actually referring to me. I LOVE IT.....I kept telling Chris that she was MY baby :) LOL

By the way Thanks Kerry I LOVE THIS PHOTO!!!

GO NFC EAST!!!

A little clarification....

Just wanted to clear up something from my last post.....We have no intentions of moving from our current home. When I said leave the hood I meant just to get out and have some fun....I think I 'll be living in that house forever :) That is not such a bad thing :)

And Tara if you can figure anything out about the gas prices let me know 3.10 for the cheapest is killing me....I remember when I was first driving it was .99-.97 a gallon :)

Recession

I know I know if you were to ask the President if we are in a recession he'll tell you "no" but I would imagine that is because it is not effecting him directly.... Where I live and in my business it is killing everyone. I guess it is something most people go through at one point or another during there lifetime so I do not know why I thought it would never effect me....Let me tell you all it SUCKS!

This is just a total vent post just because...
...I hate that my kids can not do extra activities or go anyplace over the weekend, I hate that Tatum is not going to have a party for her 2 Birthday (which by the way is in 3 weeks), I hate that Emma has to choose who she wants to go see Disney on Ice with since we can not afford for the entire family to go and worse then that I hate that she picked Chris...LOL

The worst part is the strain that financial crap put on relationships....I guess you do learn one thing from it and that is how not worth it is to live above your means. Hopefully by summer we can have it mostly worked out so that maybe we can leave the neighborhood. On the plus side there is tons to do in the hood so it won't be so bad, and beside once I sell my car who wants to go anywhere crammed in a 2 door civic.....Oh well such is life I guess, it well be nice not to have a car payment just have to keep our fingers crossed that our little civic well run forever it already has 150k on the original clutch, hehehe.

I guess we'll all look pretty cute sporting around in my little red car....who needs four doors anyway :) Just bigger incentive to perfect that walk to the pool.

OK, I am done complaining and now that I am laughing at myself I feel much better. Happy Monday :)

Growing up...

I have begun to realize over the last month how grown up Emma is becoming. Her newest thing is showering all by herself, she actually does a good job. It snowed here on Thursday and it amazed me how she is actually old enough to play and sled like a regular kid. I mean she has always been a regular kid but it is like overnight she is no longer a baby. Although I miss my baby this new little girl she has become is a lot of fun. To bad she would rather have fun with Dad but I am working on that one.

Tatum is growing up also she is all over the house and into EVERYTHING. I guess you all were right the more she steadies her walking the more she talks to us even if no one understands what she is saying the sounds are pretty cute. I spoke to Lisa her ST the other morning and she also feels that after she m,asters walking she'll start talking. She says kids usually focus on one thing at a time and the big thing that I have noticed with Tatum is she is no good at multitasking. I guess she has realized at the ripe young age of 1 that it is way overrated!!

Well I hope everyone has a good weekend my consists of cleaning up after 3 kids and Pim who trash the house during the week :) I guess it could be worse...I am actually going to check out an apartment with Autumn this afternoon, yeah she is finally moving back to MD.